“In 2013, I was invited to participate in a research project at Tufts CTSI. This was my introduction to Tufts CTSI. It was a wonderful experience. When given the opportunity to join the Stakeholder Expert Panel, I gladly accepted. I see my role at Tufts CTSI as a Stakeholder representing the patient community.”

Deane K. Felter
Stakeholder Expert Panel Member

Overview

Tufts CTSI Stakeholder Expert Panel (SEP) members come from a variety of backgrounds and are  committed to accelerating translational research by providing new perspectives. Panelists include community members, patients and their families, researchers, medical industry representatives, and health care providers. Right now, six Panel members participate in Tufts CTSI work committees and research teams. The SEP is available to advise researchers, leaders, and community members who wish to advance their research goals.

The SEP meets regularly, and the time commitment for members is flexible.

Who is eligible?

Anyone with an interest in learning more about research and making research more relevant to their community is eligible to join the Stakeholder Expert Panel, especially patients and community partners with a connection to Tufts.

SEP Services

The SEP can help with:

  • Developing program initiatives in alignment with our team science vision
  • Improving the participant experience in clinical trials – beginning with recruitment
  • Building and sustaining relationships between communities and researchers
  • Advancing community-prioritized research projects

SEP Activities

  • June 2018: Community Orientation to Health Research for SEP members
    • This event provided an overview of the research process, visits to a basic science lab and to the Tufts Clinical and Translational Research Center, and a discussion with a health economist. Panel members indicated their areas of research interest.
  • October 2018: SEP members participated in the Health Equity Research Symposium Plus.
  • November 2018:
    • SEP members participated in Translational Research Day.
    • Tufts CTSI staff supported a Panel member’s response to a MA Department of Public Health Request for Information on a planned RFP to address gun violence.
    • SEP member helped to develop a learning module to support recruitment of elderly participants into clinical research.
  • January 2019:
    • Five SEP members reviewed Tufts CTSI Pilot Studies Program applications. SEP reviewers submitted scores and comments, and participated in the full review committee meeting.
    • SEP met to discuss progress and provide advice on continuing to embed Panel members in Tufts CTSI groups and activities.
  • May 2019:

Contact

Marguerite (Maggie) Fenwood-Hughes, MSW, MS, Project Manager

Robert Sege, MD, MPH, Co-Director, Stakeholder and Community Engagement