Overview

Tufts CTSI Stakeholder Expert Panel (SEP) members come from a variety of backgrounds and are  committed to accelerating translational research by providing new perspectives. Panelists include community members, patients and their families, researchers, medical industry representatives, and health care providers. Right now, six Panel members participate in Tufts CTSI work committees and research teams. The SEP is available to advise researchers, leaders, and community members who wish to advance their research goals.

The SEP meets regularly, and the time commitment for members is flexible.

Who is eligible?

Anyone with an interest in learning more about research and making research more relevant to their community is eligible to join the Stakeholder Expert Panel, especially patients and community partners with a connection to Tufts.

SEP Services

The SEP can help with:

  • Developing program initiatives in alignment with our team science vision
  • Improving the participant experience in clinical trials – beginning with recruitment
  • Building and sustaining relationships between communities and researchers
  • Advancing community-prioritized research projects

SEP Activities

  • Clinical Research Coordinator Trainings: SEP members role-play as patients to teach coordinators about informed consent.
  • Compendium review: SEP members provide  feedback on recruitment strategies for study teams who need help with recruiting and retaining volunteers for research studies.
  • Conversations with Principal Investigators: SEP members meet with researchers to talk about the results of their projects, and how to share them with the public.
  • Event attendees: SEP members are active participants at events such as Translational Research Day (Tufts CTSI’s annual conference).
  • Event speakers: SEP members serve as panelists, discussants, and planning partners at events to share their perspectives as community members and research participants.
  • Learning opportunities: SEP members are invited to participate in tours of research labs and other facilities to learn about the research process.
  • Graduate thesis proposal review: SEP members review and provide feedback on students’ stakeholder engagement plans.
  • Grant application review: SEP members review the stakeholder and community engagement sections of applications for Tufts CTSI’s Pilot Studies Program.
  • Researcher Trainings:  SEP members help researchers improve their approach to sharing their research results with study participants.
  • Survey review: SEP members provide feedback on surveys that will be sent to members of the public.

Contact

Robert Sege, MD, MPH, Co-Director, Stakeholder and Community Engagement