Meet some of the dedicated members of our Stakeholder Expert Panel:
Sue Asci (Member since 2019)
Sue Asci is a senior financial writer and a patient advocate. Sue is a survivor of inflammatory breast cancer and serves as president of Inflammatory Breast Cancer, New England Region Inc.
Beverly Cohen (Member since 2018)
Beverly Cohen is the founder and president of OnTarget Coaching, a coaching, training and professional development practice. She is committed to community service by supporting local Church Health Ministry, R.I.S.E Girls Leadership Team, Boston Military Outreach Ministry Board of Directors and the Tufts CTSI IUPR Steering Committee.
Judy Ehrlich (Member since 2018)
Judy Ehrlich works as a Financial Manager at Ehrlich Dental Associates, Inc. Judy joined the Panel as a result of her extensive experience as a research participant related to managing a chronic medical condition. She contributes her valuable insights to improve the connection between investigators, study teams, and their patients.
Chien-Chi Huang (Member since 2018)
Chien-Chi Huang is the founder of the Asian Breast Cancer Project and Executive Director of Asian Women for Health. Her personal cancer journey led her to participate in national and local efforts on health equity and racial justice. Her remarkable passion for the community has changed the health care landscape for Asian women and created a pipeline of future leaders and peer health educators.
Kim Friedman Landau (Member since 2019)
Kim Friedman Landau is a retired medical social worker and medical educator who worked many years on behalf of hospitalized patients and to educate medical professionals on how to provide compassionate and culturally competent care. She is a long term breast cancer survivor and advocate for others facing challenging medical conditions in their lives.
Kerima Lewis, PhD (Member since 2018)
Dr. Kerima Lewis is a local historian and college professor who works in various academic and community settings.
Mayra Martinez (Member since 2018)
Sister Mayra Martinez is a dedicated community advocate for the Charlestown neighborhood and an active member of her church. Mayra is a former research participant at Tufts and is actively involved in her role at Tufts CTSI to connect the research process to community health impact.
Dawn Sauma, LICSW (Member since 2018)
Dawn Sauma has been the Co-Executive Director and Clinical Director of Asian Task Force Against Domestic Violence since 2010. She has worked in social services for over 27 years, predominantly with underserved Asian and Pacific Islander (API) populations in Hawaii and Massachusetts. She is also a Board Member/President-Elect of Jane Doe, Inc.
Deane K. Felter (Inaugural Member)
Deane K. Felter passed away in 2020. He was a true champion of research and research participation. His first interaction with Tufts CTSI was in 2013, when he participated as a patient-stakeholder in an Institute for Clinical Research and Health Policy Studies (ICRHPS) broadly-engaged team science project on knee replacement surgery. In 2017, he was an invaluable contributor to our Clinical and Translational Science Awards (CTSA) re-application and the formation of the Stakeholder Expert Panel.
He was an enthusiastic member of the panel, and a wonderful role model for leadership, insight, engagement, and kindness.
In addition to his work with Tufts CTSI, Deane was a patient reviewer for the Patient-Centered Outcomes Research Institute (PCORI) and a volunteer at the Arthritis Foundation. He was also the owner of Thistle Marketing Company.
We thank Deane for his many contributions to research and to Tufts CTSI. He was an inspiration to so many of us.