Tufts CTSI offers several tools to enhance community-engaged research:
Developing a Stakeholder Engagement Plan for Your Research
The following worksheets will help you develop written documentation of your plan for the involvement of stakeholders in your research. The documentation can be developed by excerpting relevant portions of these worksheets covering the following topics:
- Identification of relevant stakeholder communities and a rationale for inclusion in or exclusion from your work
- A plan for recruiting individuals to represent each of the stakeholder communities you wish to involve
- A plan describing the modes of engagement (how individuals will be involved) and roles of engagement (in what research activities they will be involved).
- A capacity-building plan to prepare stakeholders to work with technical methods, topics, and professionals.
- A plan to assess the impact of engagement on 1) your research budget and productivity, 2) research procedures, and 3) research outcomes.
Community Members’ Guide to Submitting a Community-Engaged Research Federal Grant Application
This guide was written for community-based organizations interested in community-based research partnerships with academic researchers. Visit the Community Members’ Guide page to view and download the guide and access the guide’s appendix.
Building Your Capacity: Advancing Research Through Community Engagement Curriculum Guide
In 2011-2012, Tufts CTSI partnered with the Center for Community Health Education Research and Service (CCHERS), the Immigrant Services Providers Group/Health, and Harvard Catalyst to develop an interactive program that would build the capacity of community-based organizations to participate fully in community-engaged research. This landmark program now serves as a national model for other CTSA community empowerment training programs.
Our partners in the development of this practical curriculum guide were:
- Center for Community Health Education Research and Service (CCHERS)
- Harvard Catalyst
- Immigrant Service Providers Group/Health (ISPG/H)
- Institute for Community Health
- Tufts Community Research Center.
Sample Documents for Community Organizations Regarding Research Partnerships
As part of our Building Your Capacity Program, we prioritized providing communities with tools to negotiate with researchers regarding parameters for community-research partnerships. Communities sought methods of building equitable partnerships, proactively considering factors important in the negotiation process instead of the more common experience of reacting to a researcher’s request.
Lawrence, Massachusetts is a small city north of Boston with a large immigrant population. City leaders developed several documents specifying what steps researchers needed to take to partner with Lawrence community members around research, a glossary of research terms for community members, and published a paper describing their efforts:
- Lawrence Tools for Research Partnerships (PDF)
- Lawrence Steps for Building Successful Research Partnerships (PDF)
- Lawrence Non-collaborative Community Response Research Questions (PDF)
The Multicultural AIDS Coalition (MAC) is a community-based organization in Bostonoften approached by researchers. Their policy statement provides guidelines for researchers interested in partnering with MAC.
- MAC Policy Statement (PDF)
Research Participants’ Bill of Rights
The Research Participant Bill of Rights was developed in 2009 to affirm that research must respect and honor the rights of individuals participating in research.
This document summarizes the guiding principles in conducting research studies and clinical trials that bring state-of-the-art medical care and therapies to our patients. The bill of rights was developed by researchers and staff affiliated with the Tufts University, Boston University, and Harvard University CTSA sites in conjunction with their affiliated hospitals.
Read the Research Participants’ Bill of Rights (PDF).
Self-assessment Tool for Community-engaged Research
Often when a community group and researchers are first negotiating, it’s not clear what questions need to be asked by each party.
The self-assessment tool is designed to guide community organizations and potential research partners through some of the questions that may be helpful to think about as you negotiate at the beginning of a research partnership.